The result was compared to the application of SF-36 and turned to be sensitive, reliable and reproducible, which is in agreement with the results found and with the characteristics of this study. All items were found to be highly associated with the scales to which they contribute.

Qual Life Res 2004;13:1409-1414. Boston: The Health Institute, N Engl Med Center, 1993. Norquist JM, Fitzpatrick R, Jenkinson C. Health-related quality of life in amyotrophic lateral sclerosis: determining a meaningful deterioration. The amyotrophic lateral sclerosis assessment questionnaire (ALSAQ-40): tests of data quality, score reliability and response rate in a survey of patients. The level of significance adopted was that of 0.05 for all of the statistical tests.

The amyotrophic lateral sclerosis (ALS) is a degenerative neurological disease that represents a great impact in the quality of life (QL) of its patients. deze Corona crisis.

In this study, the index for Chronbach's Alpha Coefficient for the ALSAQ-40/BR revealed to be higher than the SF-36.

The score ranges from 0 to 100; the higher the score, the worse the QL3-5,7,14.

The reproducibility and validation of ALSAQ-40/ BR, make this instrument a useful, additional parameter which can be used in the evaluation of the results for research or assistance of ALS patients. The level of reliability of ALSAQ-40/BR and SF-36 obtained in Chronbach's Alpha Coefficient is demonstrated on Table 2 and on Table 3 Chronbach's Alpha Coefficient for each dimension. Dit beleid volgt de richtlijnen van de RvA (T051) die op The ALS Assessment Questionnaire (ALSAQ-40) is used in England, Portugal, Norway, Greece, among other European countries to evaluate the aspects of health and the impact of treatment for patients with ALS 3,4,5,7,13,14. However, in the dimensions related to the function, the results do not demonstrate good reliability, which also justifies the need for specific instruments3. Deze kunt u downloaden bij Adobe.De Belastingdienst is niet … The version of ALSAQ-40/BR, was adapted into the Portuguese language after the evaluation and re-evaluation of 20 patients with a defined ALS diagnosis.

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In conclusion, the sample allowed for validation of the ALSAQ-40/BR in the Brazilian population.

In Brazil, the QL scale mostly used is the Short Form Health Survey (SF-36) 6, which evaluates QL, although it is not specific for ALS. Moral implications for clinical practice. Guillemin F. Cross-cultural adaptation and validation of health status measures. J Neurol Neurosurg Psychiatry 2001;70:70-73. Het doel is het terugdringen van het aantal onveilige situaties met minder incidenten (verzuim, schades) tot gevolg.

[ Links ], 13. Jenkinson C, Hobart J, Chandola T, Fitzpatrick R, Peto V, Swash M. Use of the short form health survey (SF-36) in patients with amyotrophic lateral sclerosis: tests of data quality, score reliability, response rate and scaling assumptions.

Top Towers Offices Torre Norte. The final score ranges from 0 to 100; the higher the score, the better the QL6,11,16. The level of reproducibility can only be 'acceptable' or 'not-acceptable'. Copyright © 2020 Elsevier B.V. or its licensors or contributors.

The research conducted refers to a prospective analysis with the participation of 20 subjects of both genders, taken ill by ALS. Copyright © 2000 Published by Elsevier B.V. https://doi.org/10.1016/S0022-510X(00)00420-2.

The ALSAQ-40/BR is comprised of 40 questions, divided into five dimensions: (1) activities in daily life (ADL) and independence (10 items); (2) physical aspects (10 items); (3) food (3 items); (4) communication (7 items) and (5) emotional aspects (10 items), involving the areas of physiotherapy, occupational therapy, speech therapy and psychology.

J Neurol Neurosurg Psychiatry 2003;74:242-245. Jenkinson C, Fitzpatrick R, Brennan C, Swash M. Evidence for the validity and reliability of the ALS assessment questionnaire: the ALSAQ-40. Sample: Five hundred patients were randomly selected from the membership lists of the MND Association, of whom 250 received the MND Association Survey and the ALSAQ-40. Design: A survey of members of the MND Association of the UK, of which half were randomly allocated to receive a survey instrument from the MND Association and the other half allocated to receive the MND Association survey instrument and also the ALSAQ-40 questionnaire.

World Health Organization Quality of Life. Manual and interpretation guide.

The interest of measuring and monitoring the state of health and perspective of patients with diagnosis that lead to neurological conditions, such as ALS, have grown during the last few years3,12. The demonstration of its reproducibility and reliability makes this instrument an additional and useful parameter which can be used in the evaluation of ALS for research or assistance. Measuring health-related quality of life. Neurosciences 2004;12:147-151. ScienceDirect ® is a registered trademark of Elsevier B.V. ScienceDirect ® is a registered trademark of Elsevier B.V. The social demographics of the individuals who participated in the research can be observed on Table 1. Presentatie Self Assessment Questionnaire (SAQ) Werkzaam in de bouw? Rev Bras Reumatol 1999;39:143-150. J Neurol 1999; 246 (Suppl 3):S16-S21. Foi aplicada em 20 pacientes com reteste após 30 dias.


In the second interview, done 30 days after, the subjects of the research filled in the ALSAQ-40/BR again (re-evaluation).

Patients with a history of dementia, previously evaluated by the neurologist, were excluded. Over half of the respondents received the ALSAQ-40.

The reproducibility of the scale was verified through Wilcoxon's test, compared to the results obtained between the evaluation and re-evaluation, with the intention of verifying possible differences amongst the results given. Jenkinson et al.3, through the use of the SF-36 scale in patients with ALS, concluded that this scale supplies reliable data for the group studied.
Ware JE Jr, Snow KK, Kosinski M, Gandek B. SF-36 Health Survey. Currently, there is no effective treatment; predominantly palliative measures are being used.

Norquist JM, Jenkinson C, Fitzpatrick R, Swash M. Factors which predict physical and mental health status in patients with amyotrophic lateral sclerosis over time. Pavan K, Marangoni BEM, Zinezzi MO, et al.

By continuing you agree to the use of cookies. In this study, the reproducibility analysis in only 6 of the 40 questions of the questionnaire evaluated, did not reach the level of significance adopted, resulting in a level of 85%, which is considered, in the procedures of validation, a sufficient satisfactory result according to the criteria of Guillemin in 199519, which considers as significant, results higher than 2/3, in the evaluation of reproducibility.

In verband met het Coronavirus is besloten het evenement te verzetten naar najaar 202027-02-2020 Bereid u voor, verplicht vanaf 2021! Adaptation of the transcultural questionnaire of the evaluation of the amyotrophic lateral sclerosis (ALSAQ-40) in the Brazilian culture and language. The use of questionnaires, whether generic or specific, as instruments of evaluation for QL, has been intensified in scientific research.

J Neurol Sci 2000;180:94-100. The instruments used for measuring must be sensitive to detect changes that happen over time and amongst groups, as well as identifying the benefit of different treatments6,11. Scientific Advisory Committee of the Medical Outcomes Trust – SAC Instrument Review Criteria 1995. This is how the use of the specific scale of QL justifies itself to the disease. [ Links ], 8. Ann Inter Med 1993;118:622-629.

De vragenlijst is primair ontwikkeld voor patiënten met artritis 1. Palavras-chave: qualidade de vida, esclerose lateral amiotrófica, questionários.

Amyotroph Lateral Scler Other Motor Neuron Disord 2003;4: 112-117. However, new therapeutic resources are emerging to slow the progression of the disease and extend survival1-5.

[ Links ], 4. Jenkinson C, Fitzpatrick N. Reduced item set for the amyotrophic lateral sclerosis assessment questionnaire: development and validation of the ALSAQ-5.

Since high score in SF-36 questionnaire and ALSFRS-r and low score in ALSAQ-40 means better QoL and functional ability, more reverse correlation in comparisons would show greater validity. Problems such as difficulty in communication, self-perception, physical abnormalities or discomfort are rarely present in the generic evaluations, being that these aspects are the ones that offer a higher impact in the QL of the patients with ALS7. Presentatie Self Assessment Questionnaire (SAQ). [ Links ], 10. Nederlandse Health Assessment Questionnaire (HAQ) Beschrijving: De Health Assessment Questionnaire meet moeilijkheden bij het uitvoeren van activiteiten in het dagelijks leven.

De Veiligheidsladder biedt kaders voor veilig werken voor bedrijven die in diverse sectoren werkzaam zijn.

All subjects or responsible legal guardians signed the consent form, in freedom and clarity, after being informed of the objective of the research. Jenkinson C, Fitzpatrick N, Brennan C, Bromberg M, Swash M. Development and validation of a short measure of health status for individuals with amyotrophic lateral sclerosis/motor neuron disease: the ALSAQ-40. [ Links ], 9. The original scale contained 78 items, however, afterwards, studies indicated that 40 items evaluated the main complaints of these patients4.

Results: Response rate to the survey was 59.2%. The amyotrophic lateral sclerosis (ALS) is a degenerative neurological disorder that has a great impact in the quality of life of the patients.


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